Interaction with this post, in any form, will help the incredible families working hard on this campaign. They deserve to be heard…… 👇🏼 On the 11th November 2025, The National Institute for Health and Care Excellence (NICE) are making a decision that will change the trajectory of SMA families forever. They will decide if they will continue treatment in England to people affected by Spinal Muscular Atrophy. Spinal muscular atrophy (SMA) is a genetic condition that causes progressive muscle weak
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